Are there resources you would like to see listed here ? We are stronger together and together we shall overcome.
(email us if there are any broken links or you have something to add to this page)
contact HOPE TBI at email: firstname.lastname@example.org
SUPPORT GROUPS and SITES
( Links – listed in alphabetical order )
Active Heroes (to continue a mission to end veteran suicide)
Since the inception of Active Heroes, the programs have adapted to identify the triggering points associated with veteran suicide. Active Heroes has national programs in every state and regional programs serving with locations.
- Active Challenges – Free events, seminars and Team Leader trainings for every state.
- Peer mentors, business partners and resources in every state
- A Military Family Retreat Center located in Shepherdsville, KY
- A Military Family Community Center in Louisville, KY
Administration for Community Living (CIL) – ACL’s independent living programs work to support community living and independence for people with disabilities across the nation based on the belief that all people can live with dignity, make their own choices, and participate fully in society. These programs provide tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect.
Brain Injury Association of America (information, advocacy, support groups by State for Brain Injury) National brain injury advocacy organization.
Brain Injury Resource Center – “Our intention is help you avoid much of the grief and loss of brain injury, and perhaps to inspire you to get involved. To achieve these goals we offer you the benefit of our considerable knowledge and Experience.
Most importantly, we learned that pro-active involvement, knowledge, self-awareness, and self-advocacy are key to quality of life following brain injury.
Centers for Independent Living (CIL) – Directory of Independent Living Centers
Brainline – BrainLine is a national multimedia project offering authoritative information and support to anyone whose life has been affected by brain injury or PTSD: people with brain injuries, their family and friends, and the professionals who work with them. BrainLine also provides military-specific information and resources on traumatic brain injury and post-traumatic stress disorder (PTSD) to veterans, service members, and their families. Through BrainLine, we seek to provide a sense of community, a place where people who care about brain injury can go 24 hours a day for information, support, and ideas.
Collidedscope – Our team helps Concussion/Brain Injury (TBI/ABI) survivors, caregivers and anyone affected by brain injury “Take Back Control.” We continue to expand our community and provide support with different tips, tools and techniques. Having dedicated our lives to helping others not feel lost or alone, we strive to create more awareness, build our team and truly make “Impact After Injury!”
Weekly call for anyone affected by brain injuries. There are different guest speakers each week. The call is at 5:30 pm PST and to signup and get the zoom link
CPAN – (Coalition Protecting Auto No-Fault) mission to be the consumer advocate for auto insurance policyholders, those who have been injured in a motor vehicle crash and the medical providers caring for them, representing them at the Capitol, in the courts, and in the public forum.
Crisis Text Line – Our first priority is helping people move from a hot moment to a cool calm, guiding you to create a plan to stay safe and healthy. YOU = our priority.
- You text 741741 when in crisis, available 24/7 in the United States.
- In Canada text 686868.
- In the UK you text 85258
- A live, trained Crisis Counselor receives the text and responds quickly.
- The Crisis Counselor helps you move from a hot moment to a cool calm to stay safe and healthy using effective active listening and suggested referrals – all through text message, using Crisis Text Line’s secure platform.
Defense and Veterans Brain Injury Center – The Defense and Veterans Brain Injury Center (DVBIC) is a part of the U.S. Military Health System. Specifically, DVBIC is the traumatic brain injury (TBI) center of excellence for the Defense Health Agency
As the traumatic brain injury (TBI) Pathway of Care manager within the Military Health System (MHS), the Defense and Veterans Brain Injury Center promotes state-of-the-science care from point-of-injury to reintegration for service members, veterans, and their families to prevent and mitigate consequences of mild to severe TBI.
Domestic Violence Hotline – We envision a world where all relationships are positive, healthy, and free from violence. We answer the call to support and shift power back to people affected by relationship abuse. 1-800-799-SAFE.
You have to be a member of Facebook (this is free) in order to join these groups. Be selective here. Find a group or several groups to join. Don’t be afraid to leave a group after you join if it doesn’t meet your needs. Be cautious about giving out personal information (address, phone number, etc) out to people online. Some groups are public (anyone can see posts), some are closed (cannot see posts unless you are a member), and some groups are private (by invitation only).
In the search bar use searches for public and closed groups: “TBI”, “traumatic brain injury”, “concussion”, “polytrauma” “head injury”, “acquired brain injury”, “trauma support” “encephalopathy” “stroke” “shunt” “craniotomy” or any combination of words you are looking to have support for.
Family Caregiver Alliance – The mission of Family Caregiver Alliance (FCA) is to improve the quality of life for family caregivers and the people who receive their care. . Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers. Ongoing support is available with FCA, also now on a digital service platform.
FCA is a longtime advocate for caregivers in the areas of policy, health and social system development, research, and public awareness, on the state, national and international levels.
The services, education programs, and resources from FCA are designed with caregivers’ needs in mind and offer support, tailored information, and tools to manage the complex demands of caregiving.
HOPE TBI Co-Op/Exchange (donate items needed to others, acquire needed items – no selling or vendors allowed here)
National Suicide Prevention Hotline – The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals. 1-800-273-8255
Mary Free Bed Rehabilitation Hospital – Restoring hope and freedom through rehabilitation. Their vision is to be a national leader in high-value rehabilitation and post-acute care and to develop an integrated system of care throughout the Midwest.
Mental Health America (list of support groups for various needs)
Michigan Auto Trauma Network and Support Group (This is an online networking and support group for those interested in helping people involved in the No-Fault system here in Michigan.)
Motor Vehicle Accident – Support and Recovery Group, Facebook – (In Canada by Dawne McKay)
National Rehabilitation Information Center – The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). We collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR.
United States Brain Injury Alliance – The mission of the United States Brain Injury Alliance is to engage the community in preventing brain injury and improving lives. Nonprofit coalition committed to improving lives through awareness, prevention, advocacy, support, research, and community engagement.
Virtual CIL – Directory of Independent Living Centers Nationally
Wounded Warrior Project – Veterans and service members who incurred a physical or mental injury, illness, or wound while serving in the military on or after September 11, 2001. You are our focus. You are our mission.
Listings on this page, below this, are from people or organizations I have personally spoken to and have their permission to post here.
To add yours, contact HOPE TBI at email: email@example.com
Brain Attack – (a true story of stroke survival told through music; Blog to raise awareness and support for younger stroke survivors)
Carole J. Starr (brain injury survivor, keynote speaker, and author)
HOPE TBI (informational website site created and maintained by a Survivor of polytrauma and TBI)
In A Flash (Kim hosts a weekly radio show on Blog Talk Radio’s Brain Injury Radio Network. Her program, Recovery Now, is on every Wednesday night at 10pm Eastern, 9pm Central, 8pm Mountain and 7pm Pacific time. Additionally, Kim periodically fills-in for other hosts as needed!
Jumbled Brain (survivor website) A brain injury survivor, Michelle Munt, coaching survivors and caregivers through their brain injury experiences.
Life Beyond Brain Injury – (survivor website) When we are injured, we rely on the health care system to help us. When we are wronged, we rely on the legal system to help us seek justice. What if you found yourself in a situation where neither were on your side?
Love Your Brain (programs that are designed to build community, foster resilience, and help people understand the importance of loving their brain)
Replay Polo (Survivor teaches people with disabilities to ride horses)
Surviving Traumatic Brain Injury (Caregiver website about being a caretaker to her husband who sustained a brain injury)
The Story Begins (Survivor talks about his injuries and successful recovery)
Tears of Truth (chronic pain patient who lives with severe systemic-full body RSD/CRPS, Chiari One Malformation with symptoms brought on by an MVA)
Vital Ability, LLC (Transitional Life Coach, Medical Advocacy Consultant; Professional Speaker) Provides Certified Life, Career and Executive coaching services for people going through Transitions in their life. They also have a Brain Injury Support Recovery Program to assist the community with acquiring additional information, strategies, and coping tools for their own journey or the journey of someone they know.
BOOKS by Survivors/Caregivers
Almost – Andy Nicholson
Behind The Glass – Adrian Torbenson
Blessings Every Day, Never Ask Why; Never Give Up – Melissa Whyte Hickson
Falling Ashes – Adrian Torbenson
Hootie’s Hollow and the Magic Tree – Kim Justus
In A Flash – Kim Justus
It’s All In Your Head – Blaine Stanziana
My Miracle – Rodney L. Barnes
Prisoners Without Bars: A Caregivers Tale – Donna Figurski
TBI – Traumatic Brain Injury – The Caregiver’s Perspective – Bobby Porter
Truth Be Told – Justine Johnston (JJ) Hemmestad
MUSIC by Survivors/Caregivers
Hope Survives – Cristabelle Braden
Into The Free – Lori Conti
Invisible – by Scottish Head Injury Music Support Group
Just Can’t Move On – Adrian Torbenson
Post Concussionist – A song about Traumatic Brain Injury – Vera Quijano
We’re Gonna Make It – Brain Injury Awareness Music Video – Cristabelle Braden
Organizations and Businesses
Cerescan – Functional Brain Imaging (SPECT-CT) this company focuses on removing diagnostic bias and applying innovation to create a more precise understanding of brain-based disorders, enabling healthcare providers to make more-informed decisions regarding patient-specific treatments, and contract research organizations (CROs) to access interlocked capabilities that add value to the clinical trial process and workflows.
Center For Neurological Studies – The Center for Neurological Studies mission is to advance the scientific research of neuroimaging methods to translate new insights into improve diagnosis of brain injury and provide educational resources of these findings; as well as provide support and resources to other organizations that provide educational materials of brain disorders.
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