Check out our latest page addition to our Site. HOPE TBI has partnered with Vital Ability, LLC to offer our readers access to another resource:
The “Brain Injury Mentor Program” puts you in contact with a mentor who connects with you on a one-to-one basis, helps inspire you, and helps you figure out how to overcome roadblocks. They provide you with resources and tools based on their own experiences, connections, and self-advocacy strategies.
They are someone that is knowledgeable about the medical field that can listen, relate, and be supportive, through a research and strengths-based approach, as you navigate your own brain injury process.
Human beings are creatures of time. We are preoccupied with what time it is, getting somewhere on time, keeping calendars, planners, setting timers, setting alarms, and wondering how much time is left so we can stretch our budget until our next payday, and even how much time is left in our current life. Maybe we are even too obsessed at varying moments throughout our life and as a society as a whole.
Some, like Albert Einstein would even say that time is an illusion…a distraction to keep us shackled between the past and the present. To many physicists, like Carlo Rovelli, who says “…our perceived reality is a sequence of events (past, present, and future), and we assign the concept of time to that sequence” – thus making time an illusion.
Other physicists would say that while we experience time as psychologically real, time is not fundamentally real.
The sensation of time seeming to perpetually “freeze” often arises as a byproduct of awe or amazement, that rare but overwhelming feeling of reverence we experience when witnessing something wonderful or miraculous.
Interestingly, one of the strangest side-effects of intense dread or fear, is the magnification and simultaneous slowing down of time. This is often put into visual form in movies when we see a specific moment or scene slowed to a very dramatic and obvious pace that seems surreal.
Additionally, a lot of us find ourselves losing track of time. Among all the things that can cause this losing track of time phenomena, there are some medical things to consider as possibilities. For example, how fast we are able to process our sensory input along with what we experience with our senses can change our perception of time. There are even a few studies that show that an auditory event can appear to last longer than one that we see visually. According to one study, we feel time passing faster when we enjoy things that are rewarding or pleasurable, which increases dopamine activity in the brain. Losing time can also indicate dyschronometria (loss of time due to dyslexia, dementia, or certain parts of the brain being damaged), ADHD, or mental health issues such as depression.
On the non-medical side of things, losing time is often experienced when we become unaware of time passing as a result of being fully absorbed in an activity or task, a consequence of procrastination, a sea of distractions, having poor time management skills, having busy schedules, following a monotonous routine, lacking motivation, or even caught up in a few moments of unplugged mindful bliss.
Another common way of tracking time is birthdays, the celebration we embrace that says we have managed to survive the trials and tribulations of another passing year. I recently celebrated my 50th birthday, 5 decades, or a half of a century depending on whether it is laden with jokes or not.
Another way of marking milestones of time is by recognizing certain anniversaries. Some anniversaries are endured (usually those associated with heartache, sense of loss, or grief); and some celebrated (like a birth, graduation, marriage, accomplishment, or milestones).
This brings us full circle to what is spurring the creation of this Blog today. This year marks the 10 year Anniversary of the very thing that inspired this very blog – an auto accident on January 4, 2014. I have posted a blog every year on or around this Anniversary, with the exception of last year (the 9th year). I was prepared to write one and then as each day passed it became something I felt I had to forego as the words I envisioned putting here seemed too far out of reach. This year, I genuinely wanted to post this on the 4th yet as the 4th got closer and closer I started to feel some kind of absolute obligation to acknowledge how far I have come. 10 years, after all, is a hell of a milestone.
I kept sitting with the words, thoughts, experiences, and memories, or lack thereof, swarming in my head of the last 10 years of this recovery and rehabilitation journey; a journey where I have inherently made, and continue to make, valiant steps at re-inventing myself. I am slowly blossoming into the me I have been becoming, and it is ironic how things have come full circle, and I am left with a stark realization that I have been gifted with time. This whole process has been extensively mind boggling, emotionally mercurial, and fills me with pause.
Let’s make a full stop to digest that for a moment.
There are many events, lessons, personal developments, professional developments, and a sordid amount of moments that have taken place. The list would be impossible to delineate or detail in a simple blog post. Yet, all have been consequential to my growth as a human being with all the cloaks of comfort and opportunity I wear (as a mom, wife, sister, friend, survivor, student, advocate, business owner, etc).
I will take this opportunity though to turn the hourglass into a verbal synopsis. Pain still wreaks havoc with me, often very unpredictably, though is more managed. Mobility is still a challenge in lots of ways, and in some ways I see, declining, yet I am still mobile, breathing, functioning. This is worth celebrating. Finances are an ongoing real struggle, yet we still find a way to make things possible. I am sure this is due to a lot of divine intervention and is truly a miraculous feat in and of itself. I am currently safe in a home with my family, and in a Country with amenities we would not be afforded in other Countries, and for this I am deeply grateful. My memory and emotions are all over over the place – each like a new discovery that I continue to protect and covet. My health is a rubik’s cube that occasionally lines up, and other times is a series of rotating puzzle pieces. However, I am still able to think, research, learn, and evolve.
I have a deep appreciation for the linked together moments that build on each other. I have been enjoying the last 3 years as a new grandmother. We now have 3 grandchildren. We have lived to see only 2 boys left at home, our youngest start High School, and I myself have even returned to school to further my own education. I have met many professional goals (albeit much slower than I originally envisioned), and continue to move forward with this venture. We have all been blessed with 9 more years of time with my mom (who nearly died, went on and came off a vent in 2015). Indeed, there are many things to be grateful for.
My journey has afforded me the opportunity to network, meet, and advocate with lots of providers, organizations, individuals, and groups that I may not have had the opportunity to know without the time that I have been given.
This is what guides me and propels me in a forward thinking fashion. Seeing the precious process of experiences, creating new memories, and choosing to navigate all things given – whether effective or ineffective in my life.
As time passes, and I continue to reminisce about the last 10 years, and what the next 10 years might hold, I continue to be wrapped in the warmth of HOPE, faith, and an ever present growing awareness of my own mortality.
Until then….we celebrate! We celebrate being 50 years young. We celebrate only being halfway to reaching a century. We celebrate not only surviving, but thriving! We celebrate those moments that build into additional moments, which build into – despite any disabilities, hurdles, struggles, or setbacks – a life worth living.
~Caren Robinson, January 2023
I look forward to hearing your feedback. There are a number of ways to connect.
Happy 10th Anniversary to me and all my fellow HOPEsters!
Due to growth in our submissions, we took this opportunity to split up one of our pages into 2 different pages for your convenience.
Our original page used to be called Support Groups Sites and Books. This link will no longer work. However, we still have all of the great resources from this page now split into 2 pages.
Did you learn something, read anything that inspired you, or impacted you on this Site? Do you support bringing awareness to the topics written about on this Site and want to see more content?
Keep This Website active, growing and it services FREE.
You can support general operations, outreach, and awareness efforts of HOPE TBI.
Hello my fellow HOPEsters. I am so very excited to introduce and offer some additional and new opportunities and resources to bring awareness about brain injury and polytrauma to our followers, supporters, advocates, and new HOPEsters on a global level
Can you believe we have been around for 8 years now?
While we will continue to offer all of you many free resources here at HOPE TBI, including relatable content through an active Blog, numerous resources, our tireless research on various topics, an evolving informational podcast, networking opportunities, and help in creating and e-publishing your stories – we are now also offering some other additional options as well.
We are now able to offer informational workshopstailored for your organization, group, class or event.
We also are now able to offer supportive services at an elevated level through our new medical advocacy consultant services with monthly memberships. at a considerable and affordable option for those interested in a bit more than what we offer for free.
Check out our paid services pageunder the “About Our Site” tab at the top of the page on the left (first tab on the menu list if looking at this from your mobile).
Let us know what you think check out the page and let’s see those messages start flying. Help me welcome Vital Ability, LLC as a partner.
Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here: Reviews and Testimonials
Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.
Thank you for visiting us! We look forward to hearing from you.
Come and listen this coming Wednesday 8/10/2022 at 10pm EST as Kim and Co-Host Caren, will be discussing Navigating Mental Health after a Brain Injury, and reframing our thought patterns.
Can a brain injury lead to mental health conditions? How can we help ourselves self-regulate?
Check out the Orginal HOPEster. The Survival Story of our HOPE TBI founder.
It’s been a while since I have shared my story and I wanted to share it with those of you who may not know it. Thank you for being here as part of my ongoing recovery. I just wonder if we just continue in our process for the duration of our entire lives.
Isn’t the brain and the body magnificent?
“My name is Caren Robinson. I have always been a busy gal. Adrenaline junkie to some regards. Loved riding motorcycles, roller coasters, diving off bridges to go swimming, and also anything to do with The Arts really. I have always had a job since I was … Continue reading HERE….”
My Story page has gotten a wee bit of a face lift, and a few more clarification and more information added. Funny how as time passes, things are easier to talk about. At least some things.
Easter actually began as a pagan festival celebrating spring in the Northern Hemisphere, long before the advent of Christianity. “Since pre-historic times, people have celebrated the equinoxes and the solstices as sacred times,” Later, Easter became recognized as the highest celebration of Christianity. Because the resurrection establishes the belief in life after death. Happy Easter if that’s you. However you believe, spring signals a time of renewal, when new life and color emerges.
Add the Virus and other news hot topics the past few years, and there has been ample opportunity for us to have reason to grieve. With more isolation, lock downs, fear mongering .. Grief over real losses of all kinds, has perhaps been even harder to bear. Grief is stressful enough, but add everything else mentioned, and no one has been immune to grief. We must take time to grieve, or we would never fully appreciate gratitude.
Tonight we discuss grief and renewal for brain injury survivors. We’ve felt the sorrow, now how do we refresh and move forward?
This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”
We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a good bit of Warrior!
Hosted by Kim Justus, author of In a Flash: Miracles Here and Beyond and Hootie’s Hollow and the Magic Tree found at inaflash.org and Amazon & “Like” me at facebook.com/inaflash.org too! For More on Caren’s great Blogs and Resources see: hopetbi.com
This is an excerpt from the Paper written by renowned Neurologist “Masel”:
“……The purpose of this paper is to encourage the classification of a TBI not as an event, not as the final outcome, but rather as the beginning of a disease process. The paper presents the scientific data supporting the fact that neither an acute TBI nor a chronic TBI is a static process—that a TBI impacts multiple organ systems, is disease causative and disease accelerative, and as such, should be paid for and managed on a par with other diseases. Despite the fact that patients with a TBI who survive the acute event do not die of their brain injury per se, a TBI is a disease…….”
Masel, B. Conceptualizing Brain Injury as a Chronic Disease. Vienna, VA: Brain Injury Association of America, 2009.
This group is to list durable medical equipment, supplies, technology, machinery, prosthetics, etc. that you are ‘gifting” for FREE to someone in need.
You may also post a request if you are needing something as well. Please only request item(s) if unable to acquire by any other means. No acquiring items just to sell them.
THIS GROUP IS NOT OPEN TO VENDORS.
[Disclaimer: This group does not support or endorse the exchange of medications or supplements in any form. Please see your medical providers for those needs. This Group or its Owners/Moderators are not responsible for any transactions, equipment, or product exchanges with another member]
Gifted Items/Needed items can be, but are not limited to: vehicles, hospital beds, wheelchairs, braces, ventilator equipment, oxygen concentrators, traction equipment, personal care aids, books, Posey Lifts, adaptive equipment, Manuals/information, Bathing Supplies, mobility aids, etc – and other items useful to a person with a disability or injury. The sharing opportunities are endless.
We realize that Insurance does not always cover all the needs a person has after experiencing a devastating and catastrophic medical emergency. We also realize not everyone has insurance. We understand being financially strapped, destitute, or handicapped after a life changing medical event.
Being a member of this Group does not imply nor guarantee that you will have your needs met or provided, but merely an additional opportunity to network with those who may be able to help directly or indirectly.
This Group will also allow you the opportunity to share your fundraising pages or place to post your public funding request page links (like Go Fund Me Page, PostHope page, Pay It Forward Page, YouCaring page, Give Forward, Donors Choose, etc). Be prepared to be vetted for authenticity.
It is strongly advised that if you meet anyone offline, that you do so in a public and safe location.
Kim and Caren discussed, reaching out and staying connected during this difficult time in our history. We discussed tips and ways to stay connected.
We took callers .. Interested in hearing how our listeners are coping with the “New World” and their thoughts, fears, feelings.
This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”
We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a large dose of Warrior!
Hosted by Kim Justus, author of In a Flash: Miracles Here and Beyond found at inaflash.org & “Like” at facebook.com/inaflash.org Co-Host is Caren Robinson found at: hopetbi.com
March is Brain Injury Awareness Month. Check out our recent Radio Show with Caren Robinson and Kim Justus as Co-hosts.
Kim and Caren will be discussing the basics of Brain Injury in an effort to raise up the understanding, as we begin Brain Injury Awareness Month. Among the topics discussed will be: Mindfulness Techniques, Meditation, Positive Psychology, EMDR and other holistic techniques. Building bridges and synapses the Non Pharma way! In keeping with my shows this month .. We will have more give aways .. Marchtacular!! One survivor, supporting another. Every show has a promo give away – Listen to win!
This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”
We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a large dose of Warrior!
Come and Listen to our recorded Radio Show called Recovery Now with Kim Justus and Caren Robinson as we talk about Love, Sex, and TBI – Beyond the Chocolates.
We would love your feedback. Feel free to share the link and start a dialogue.
Brain Injury Radio Announcement. Come join us in listening….
Toxic Providers have you down, confused and frustrated? Join Kim and Caren as they discuss Co-Morbidity and Mixing it up with TBI and PTSD – Wednesday – January 8th, 2020
To Access 7pm PAC/10pm EST Call 424-243-9540 or Click Link Below to Hear Live Show, and Afterward to hear On Demand Program
I had the opportunity to co-host an online radio show LIVE.
We discussed “The Cost of Trauma on Recovery Now”. We were covering the cost Social Trauma vs Individual Trauma and shared a dialogue about our views and defining of terms regarding Trauma.
Something we didn’t have an opportunity to cover is the generational movement of folks not wanting to have kids at all or build their own families due to the potential exposure to Trauma, violence, or the eroding of society, our humanity, and the environment as a whole and how the current Trauma’s and experiences in our societies are impacting the future of humanity. It is imperative that as a collective consciousness we develop and implement ways to reduce, recover , and or eradicate as much Trauma as possible.
Please take an opportunity to share the link with those you feel will benefit from this topic.
Feel free to click on the link yourself as well and listen to the show.
Well I did something magnanimous this past Wednesday evening. I had received an invitation to be interviewed on Brain Injury Radio by Kim Justus.
I took the plunge, and embraced the opportunity to share some of my experiences over the course of the last 5 years in regards to bringing awareness to Polytrauma and Traumatic Brain Injury on a International Radio Show. How exciting to be a part of something so deeply personal, meaningful, and far reaching.
Check it out…take a listen and leave a comment below. Let me know if there was anything on there you could relate to. Feel free to share this link with anyone you think would benefit from hearing its content. I’d love to get your feedback!!!
Some of the resources mentioned on the show were the following:
Audiology testing, SpectCT Scan, Medical Acupuncture, alternative Medicine, cognitive fatigue (neurofatigue), among other things….and the mentioning of the following groups: