Page Changes and Updates

Due to growth in our submissions, we took this opportunity to split up one of our pages into 2 different pages for your convenience.

Our original page used to be called Support Groups Sites and Books. This link will no longer work. However, we still have all of the great resources from this page now split into 2 pages.

These pages have been changed to:

Support Groups, Sites, and Organizations

Survivor/Caregiver Blogs, Books, and Music

Did you learn something, read anything that inspired you, or impacted you on this Site? Do you support bringing awareness to the topics written about on this Site and want to see more content?

Keep This Website active, growing and it services FREE.

You can support general operations, outreach, and awareness efforts of HOPE TBI.

DONATE HERE

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

Thank you for visiting the HOPE TBI Website.

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

REVIEWS and TESTIMONIALS

Thank you for visiting us! We look forward to hearing from you.

New Page Created –

Hello my fellow HOPEsters. I am so very excited to introduce and offer some additional and new opportunities and resources to bring awareness about brain injury and polytrauma to our followers, supporters, advocates, and new HOPEsters on a global level

Can you believe we have been around for 8 years now?

While we will continue to offer all of you many free resources here at HOPE TBI, including relatable content through an active Blog, numerous resources, our tireless research on various topics, an evolving informational podcast, networking opportunities, and help in creating and e-publishing your stories – we are now also offering some other additional options as well.

We have partnered with Vital Ability, LLC to bring you even more options here at HOPE TBI.

(*** DRUM ROLL PLEASE ***)

We are now able to offer informational workshops tailored for your organization, group, class or event.

We also are now able to offer supportive services at an elevated level through our new medical advocacy consultant services with monthly memberships. at a considerable and affordable option for those interested in a bit more than what we offer for free.

Check out our paid services page under the “About Our Site” tab at the top of the page on the left (first tab on the menu list if looking at this from your mobile).

Let us know what you think check out the page and let’s see those messages start flying. Help me welcome Vital Ability, LLC as a partner.

Paid Service Options

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here: Reviews and Testimonials

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Brain Injury Radio – August Episode

Come and listen this coming Wednesday 8/10/2022 at 10pm EST as Kim and Co-Host Caren, will be discussing Navigating Mental Health after a Brain Injury, and reframing our thought patterns.

Can a brain injury lead to mental health conditions? How can we help ourselves self-regulate?

Wednesday Radio Show – 10pm EST

CHECK OUT OUR OTHER SHOWS:

Radio Shows with Caren Robinson and Kim Justus

Caren Robinson – Survivor

Check out the Orginal HOPEster. The Survival Story of our HOPE TBI founder.

It’s been a while since I have shared my story and I wanted to share it with those of you who may not know it. Thank you for being here as part of my ongoing recovery. I just wonder if we just continue in our process for the duration of our entire lives.

Isn’t the brain and the body magnificent?

“My name is Caren Robinson. I have always been a busy gal. Adrenaline junkie to some regards. Loved riding motorcycles, roller coasters, diving off bridges to go swimming, and also anything to do with The Arts really. I have always had a job since I was … Continue reading HERE….”

My Story page has gotten a wee bit of a face lift, and a few more clarification and more information added. Funny how as time passes, things are easier to talk about. At least some things.

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

Reviews and Testimonials

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Grief and Renewal

Brain Injury Radio Show – Listen to our April 2022 Episode – HERE

Easter actually began as a pagan festival celebrating spring in the Northern Hemispherelong before the advent of Christianity. “Since pre-historic times, people have celebrated the equinoxes and the solstices as sacred times,”   Later, Easter became recognized as the highest celebration of Christianity. Because the resurrection establishes the belief in life after death. Happy Easter if that’s youHowever you believe, spring signals a time of renewal, when new life and color emerges.

Add the Virus and other news hot topics the past few years, and there has been ample opportunity for us to have reason to grieve. With more isolation, lock downs, fear mongering .. Grief over real losses of all kinds, has perhaps been even harder to bear. Grief is stressful enough, but add everything else mentioned, and no one has been immune to grief. We must take time to grieve, or we would never fully appreciate gratitude.

Tonight we discuss grief and renewal for brain injury survivors. We’ve felt the sorrow, now how do we refresh and move forward?

This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”

We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a good bit of Warrior!

Hosted by Kim Justus, author of In a Flash: Miracles Here and Beyond and Hootie’s Hollow and the Magic Tree found at inaflash.org and Amazon & “Like” me at facebook.com/inaflash.org too! For More on Caren’s great Blogs and Resources see: hopetbi.com

Other Radio Shows with Caren Robinson and Kim Justus

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

Reviews and Testimonials

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Brain Injury – A Disease Process

This is an excerpt from the Paper written by renowned Neurologist “Masel”:

“……The purpose of this paper is to encourage the classification of a TBI not as an event, not as the
final outcome, but rather as the beginning of a disease process. The paper presents the scientific
data supporting the fact that neither an acute TBI nor a chronic TBI is a static process—that a
TBI impacts multiple organ systems, is disease causative and disease accelerative, and as such,
should be paid for and managed on a par with other diseases.
Despite the fact that patients with a TBI who survive the acute event do not die of their brain
injury per se, a TBI is a disease…….”

Masel, B. Conceptualizing Brain Injury as a Chronic Disease. Vienna, VA: Brain Injury Association of America, 2009.

REPORT in PDF Format: http://www.lexisnexis.com/documents/pdf/20090513025855_large.pdf

WEBINAR: http://www.braintrauma.org/february-2011-webinar/

Is Brain Injury a Chronic Disease? (Commentary Regarding The Brain Injury of America’s “Conceptualizing Brain Injury as a Chronic Disease”)             http://www.braininjurynetwork.org/thesurvivorsviewpoint/achronicdisease.html

Brain Injury Radio Show with Dr. Brent Masel.

Quantum Leap: Dr. Brent Masel on Transitional Learning after TBI

HOPE TBI Co-OP and Exchange

Come visit us at the HOPE TBI Co-op and Exchange. Currently serving The United States and US Territories.

Please do NOT list items for sale here! We are a Co-Op/Exchange Group Only (no monies exchanged)!!!

Remember to Bookmark this Group: https://www.facebook.com/groups/HOPETBICoOpExchange/

This group is to list durable medical equipment, supplies, technology, machinery, prosthetics, etc. that you are ‘gifting” for FREE to someone in need.

You may also post a request if you are needing something as well. Please only request item(s) if unable to acquire by any other means. No acquiring items just to sell them.

THIS GROUP IS NOT OPEN TO VENDORS.

[Disclaimer: This group does not support or endorse the exchange of medications or supplements in any form. Please see your medical providers for those needs. This Group or its Owners/Moderators are not responsible for any transactions, equipment, or product exchanges with another member]

    Gifted Items/Needed items can be, but are not limited to: vehicles, hospital beds, wheelchairs, braces, ventilator equipment, oxygen concentrators, traction equipment, personal care aids, books, Posey Lifts, adaptive equipment, Manuals/information, Bathing Supplies, mobility aids, etc – and other items useful to a person with a disability or injury. The sharing opportunities are endless.

We realize that Insurance does not always cover all the needs a person has after experiencing a devastating and catastrophic medical emergency. We also realize not everyone has insurance. We understand being financially strapped, destitute, or handicapped after a life changing medical event.

Being a member of this Group does not imply nor guarantee that you will have your needs met or provided, but merely an additional opportunity to network with those who may be able to help directly or indirectly.

This Group will also allow you the opportunity to share your fundraising pages or place to post your public funding request page links (like Go Fund Me Page, PostHope page, Pay It Forward Page, YouCaring page, Give Forward, Donors Choose, etc). Be prepared to be vetted for authenticity.

It is strongly advised that if you meet anyone offline, that you do so in a public and safe location.


Brain Injury Radio and Other Outreach

Check out our latest additions to our Publications, Radio and Outreach page.

PUBLICATIONS, RADIO, and OUTREACH

Check out all the pages under our AWARENESS MATTERS tab:

HOPE TBI Awareness

Publications Radio and Outreach

Support Groups Sites and Books

Supports Sponsor and Recommended Charity Opportunities

Polytrauma/Orthopedic Resource Pages

TBI Resource Pages

Neuroscience In The News

Beating The Stigma of Mental Health

Check Out Our Radio Show from today for

Brain Injury Awareness Month.

Brain Injury Radio Recovery Now – with Caren Robinson and Kim Justus, sponsored by the TBI Network.

(click Title to right) Beating The Stigma of Mental Health

Check out our collection of other Radio Shows here as well:

Publications, Radio, and Outreach

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you

Down The Rabbit Hole during COVID-19

Brain Injury Radio Show

Kim and Caren discussed, reaching out and staying connected during this difficult time in our history. We discussed tips and ways to stay connected.

We took callers .. Interested in hearing how our listeners are coping with the “New World” and their thoughts, fears, feelings.

This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”

We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a large dose of Warrior!

Hosted by Kim Justus, author of In a Flash: Miracles Here and Beyond found at inaflash.org & “Like” at facebook.com/inaflash.org   Co-Host is Caren Robinson found at: hopetbi.com

LISTEN TO SHOW HERE

 

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Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Brain Injury Awareness Month – Radio Show

March is Brain Injury Awareness Month. Check out our recent Radio Show with Caren Robinson and Kim Justus as Co-hosts.

Kim and Caren will be discussing the basics of Brain Injury in an effort to raise up the understanding, as we begin Brain Injury Awareness Month. Among the topics discussed will be: Mindfulness Techniques, Meditation, Positive Psychology, EMDR and other holistic techniques. Building bridges and synapses the Non Pharma way!  In keeping with my shows this month .. We will have more give aways .. Marchtacular!!  One survivor, supporting another. Every show has a promo give away – Listen to win!

This show is a gathering place for anyone seeking recovery from the challenges of life on life’s terms. We discuss useful tools that have helped us lighten the load, of our journey through recovery. This is a “we” recovery program, because it is in the “we,” that we find the new “me.”

We focus on the four A’s of Recovery: Awareness, Acceptance, Action and Adaptation. This is a place for survivor’s striving to become thrivers, which takes a large dose of Warrior!

Listen To Show Here

 

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Love, Sex, and TBI – Beyond the Chocolates

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Come and Listen to our recorded Radio Show called Recovery Now with Kim Justus and Caren Robinson as we talk about Love, Sex, and TBI – Beyond the Chocolates.

We would love your feedback.  Feel free to share the link and start a dialogue.

https://www.blogtalkradio.com/braininjuryradio/2020/02/13/love-sex-and-tbi-beyond-the-chocolates-on-recovery-now-with-kim-caren

 

Sex Therapists, Counselors, and Educators

https://www.aasect.org/referral-directory

 

Sex and Disability Furniture and Alternative Assistive Devices

https://www.morethansextoys.com/pages/pleasure-able-sex-and-disabilities

https://www.intimaterider.com/

https://yourkinkyfriends.com/2018/07/04/sex-toys-and-furniture-for-people-who-live-with-disabilities/

Brain Injury Radio Invite

Brain Injury Radio Announcement. Come join us in listening….

Toxic Providers have you down, confused and frustrated? Join Kim and Caren as they discuss Co-Morbidity and Mixing it up with TBI and PTSD – Wednesday – January 8th, 2020

To Access 7pm PAC/10pm EST Call 424-243-9540 or Click Link Below to Hear Live Show, and Afterward to hear On Demand Program

The Cost of Social Trauma vs. Personal Trauma

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I had the opportunity to co-host an online radio show LIVE.
 
We discussed “The Cost of Trauma on Recovery Now”.  We were covering the cost Social Trauma vs Individual Trauma and shared a dialogue about our views and defining of terms regarding Trauma.
 
Something we didn’t have an opportunity to cover is the generational movement of folks not wanting to have kids at all or build their own families due to the potential exposure to Trauma, violence, or the eroding of society, our humanity, and the environment as a whole and how the current Trauma’s and experiences in our societies are impacting the future of humanity.  It is imperative that as a collective consciousness we develop and implement ways to reduce, recover , and or eradicate as much Trauma as possible.
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Please take an opportunity to share the link with those you feel will benefit from this topic.  
Feel free to click on the link yourself as well and listen to the show.

 

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Brain Injury Radio – Caren Robinson

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Well I did something magnanimous this past Wednesday evening.  I had received an invitation to be interviewed on Brain Injury Radio by Kim Justus.

I took the plunge, and embraced the opportunity to share some of my experiences over the course of the last 5 years in regards to bringing awareness to Polytrauma and Traumatic Brain Injury on a International Radio Show.  How exciting to be a part of something so deeply personal, meaningful, and far reaching.

Check it out…take a listen and leave a comment below.  Let me know if there was anything on there you could relate to.  Feel free to share this link with anyone you think would benefit from hearing its content. I’d love to get your feedback!!!

* Brain Injury Radio Interview – HERE * 

Some of the resources mentioned on the show were the following:

Audiology testing, SpectCT Scan, Medical Acupuncture, alternative Medicine, cognitive fatigue (neurofatigue), among other things….and the mentioning of the following groups:

Pink Concussions

Cerescan

Toastmasters International

~Caren Robinson