Our Newest HOPEster – Laura, Survivor

Check Out Our Newest HOPEster

This is what an invisible injury looks like.

The term “traumatic brain injury” wasn’t something I ever thought too much about pre-accident. It was something that happened to people in stories in the news, it was something that happened to people in the movies. It never occurred that it was something that could happen to me. And then it did. ----

HOPE TBI Co-OP and Exchange

Come visit us at the HOPE TBI Co-op and Exchange. Currently serving The United States and US Territories.

Please do NOT list items for sale here! We are a Co-Op/Exchange Group Only (no monies exchanged)!!!

Remember to Bookmark this Group: https://www.facebook.com/groups/HOPETBICoOpExchange/

This group is to list durable medical equipment, supplies, technology, machinery, prosthetics, etc. that you are ‘gifting” for FREE to someone in need.

You may also post a request if you are needing something as well. Please only request item(s) if unable to acquire by any other means. No acquiring items just to sell them.

THIS GROUP IS NOT OPEN TO VENDORS.

[Disclaimer: This group does not support or endorse the exchange of medications or supplements in any form. Please see your medical providers for those needs. This Group or its Owners/Moderators are not responsible for any transactions, equipment, or product exchanges with another member]

    Gifted Items/Needed items can be, but are not limited to: vehicles, hospital beds, wheelchairs, braces, ventilator equipment, oxygen concentrators, traction equipment, personal care aids, books, Posey Lifts, adaptive equipment, Manuals/information, Bathing Supplies, mobility aids, etc – and other items useful to a person with a disability or injury. The sharing opportunities are endless.

We realize that Insurance does not always cover all the needs a person has after experiencing a devastating and catastrophic medical emergency. We also realize not everyone has insurance. We understand being financially strapped, destitute, or handicapped after a life changing medical event.

Being a member of this Group does not imply nor guarantee that you will have your needs met or provided, but merely an additional opportunity to network with those who may be able to help directly or indirectly.

This Group will also allow you the opportunity to share your fundraising pages or place to post your public funding request page links (like Go Fund Me Page, PostHope page, Pay It Forward Page, YouCaring page, Give Forward, Donors Choose, etc). Be prepared to be vetted for authenticity.

It is strongly advised that if you meet anyone offline, that you do so in a public and safe location.


Our 2 Newest HOPEsters – Debbie and Kris

#MoreThanMyBrainInjury

We want to introduce a Survivor story and a Caregiver story.  The battle for survival and quality of life continues with these two powerful stories.  

 

Debbie Webb – “The year was 1990, I was practicing barrel racing and the horse I was riding slipped onto her side.  Upon impact with the ground, I was immediately unconscious.”  Check out her story here: 

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Kris Ruckle-Mahon – “My role went from being a parent to a caregiver on April 11, 2007, something I was not financially prepared for. I was fortunate though, to have a great work and family support system to help us through it.”  Check out her story here:

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Our Newest HOPEster Chasity

Grab a cup of tea or coffee and snuggle in for a read of the Survivor story about Chasity Christian. A survivor of many traumas and how love is carried in different forms – from our newest HOPEster.

#MoreThanMyBrainInjury

Chasity Lee Christian – Survivor

New Page Added – Clinical Neuroendocrinologists

Hello HOPEsters. We are thrilled to be able to share with you a list we have tirelessly compiled of “clinically practicing” Neuroendocrinologists who provide direct patient care.

This is not an all inclusive list and does not include Neuroendocrinologists that are  “researchers or lecturers” only.

Let us know of any others that are not on the list and we would be glad to add them.

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Also check out our Neuroendocrinology page as well, if you haven’t already done so.

How You Can Help As a HOPEster

You may be asking yourself how you can help. How can you make an impact to continue to bring awareness and support self-advocacy? How can you become a HOPEster?

Maybe you don’t have a Brain Injury and have never experienced a Polytrauma. Maybe you came upon this Website while searching for something else. Perhaps you are curious about the content, or know someone who has had a Concussion, Brain Injury or a disability.

Whether you are here accidentally or purposefully we hope you have found information and resources in this Site that have been helpful, useful, or educational to you. If this page is your first stop – please explore the rest of our pages as we offer a lot of value for your visit. We provide all these services for FREE to the community at large.

Maybe you are a survivor, a caregiver, a healthcare provider who understands all to well the content here and could even add to the stories here with your own.

If you would like to offer HOPE (Help One Person Excel) by:

Giving a gift to keep this site running and helping its services remain FREE

Help us continue to bring awareness; or just support the cause

BECOME A HOPESTER

Check out our page HOW YOU CAN HELP

Michelle and Joe Patnesky – Parents of Hailee

Check out the story about a mom fighting for the life and proper care of her daughter who was hit by a car January 2021.

When doctors and therapists don’t have faith, sometimes a family’s love and prayers can work miracles.

Michelle Patnesky, the mom of 17 year old Hailee, takes us on a journey with her family as they traverse the system to advocate for their daughter who has sustained a severe brain injury and remains in the hospital.

https://hopetbi.com/michelle-patnesky-caregiver/

Help me welcome our newest HOPE’sters!

Introducing Vera Quijano – Survivor

Check out our newest story submission. at HOPE TBI www.hopetbi.com

Vera Quijano, a dance and yoga Instructor, who is now dancing to the beat of a different drum after sustaining a Traumatic Brain Injury after surviving a vehicle accident, where she was hit by a drunk driver.

Check out her video interview here:https://hopetbi.com/vera-quijano-survivor/

Also check out a song she wrote about her journey called “Post Concussionist” here: https://www.youtube.com/watch?v=yKLVx5em_fo

At HOPE TBI we welcome Vera as our latest HOPE’ster!!!

That Mother

I just want to say to all you Mothers’s, Step-mothers, Foster Mom’s, and Guardians fulfilling a role as a “mother” figure…..

I see you.

I see your love, your sacrifice, your devotion, your fierce advocacy, your struggle, your effort, your laughter, your tears, your disappointment, your celebrations, your resentment, your anger, your amazement, your exhaustion, your selflessness, and your commitment.


I just want to say to all you Mother’s, Step-mothers, Foster Mom’s, and Guardians fulfilling a role as a “mother” figure….

I hear you.

I hear your cheers, your jeers, your concerns, your focused topics, your questions, your accolades, your encouragements, your motivational speeches, your yelling, your frustration, your grief, your joy, your coaching, your mediation, your compassion, and your ongoing effort at communication.


I just want to say to all you Mother’s, Step-mothers, Foster Mom’s, and Guardians fulfilling a role as a “mother” figure….

Just Be You.

Be the best version of yourself each day, be that disheveled mess, be that organized detailed version of yourself, be true to your values, be that parent that can admit their mistakes, be that parent that lives by example, be a stay at home parent, be a working parent, be a disabled parent, be a retired parent, be scattered, be focused, be hard to understand, be easy to get along with, be the parent that lacks humor, or be the parent that can make your child laugh. Just be YOU.


You are who your child(ren) will remember long after they have grown and you are their influencers for good or evil, love or hate, bravery or fear, joy or sadness, loved or abandoned, condemned or celebrated. You are the beginning of their imprint on the world.


Thank you for being just who you are and adding to the fabric of our world with your ability to be THAT MOTHER.


Happy Mother’s Day!


~Written by Caren Robinson 2021

HOPEster Movement

Join the HOPEster Movement!

Are you passionate, idealistic, and believe in the inherent goodness of others and our collective responsibility to each other as human beings?

Then you are a HOPE’ster!

https://www.facebook.com/groups/hopester/

#HOPEster #hope_tbi #ImaHOPEster

Brain Injury Awareness Month

Brain Injury Awareness Month
Join the  #MoreThanMyBrainInjury 
Campaign this March

The Brain Injury Association of America (BIAA) leads the nation in observing Brain Injury Awareness Month by conducting an awareness campaign in March each year.

The Brain Injury Association of America (BIAA) theme for the 2021 to 2023 campaign is More Than My Brain Injury.

About Brain Injury

#hope_tbi

Reviews and Testimonials

Hello HOPEster’s,

I wanted to reach out and share our latest and greatest page with all of you.  It is our Reviews and Testimonials page.

If you are seeing this message in your email you have subscribed to our email notification list.  That means you care enough about our content to want to be notified when we post something new.

If you are coming on this Blog post by scanning our Site, please take time to also leave your review and feedback after exploring a bit.

We would be thrilled and grateful if you would take a few moments to type up a review or feedback about our website and submit it in the comment section of our new page.

You can reach our page here:

https://hopetbi.com/reviews-and-testimonials/

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reviewstestimonials

Be A HOPEster!

WHAT IS A HOPEster?

A HOPEster is anyone who is interested in helping one person succeed to be independent – even if the person they are currently helping is themselves (specifically related to Polytrauma and Traumatic Brain Injury – though can apply to anything other than these two things as well).

A HOPEster is someone willing to share information, offer support (whether that be emotional, mental, physical, or just by sharing awareness information), and encourages advocacy (self-advocacy, medical advocacy, advocacy awareness).

A HOPEster is someone that thinks outside the box, is passionate, idealistic, and believes in the inherent goodness of others and our collective responsibility to each other as human beings.proud-to-be-a-hopester

https://hopetbi.com/awareness-matters/hope-tbi-awareness/

Be a HOPEster

A HOPEster is anyone who is interested in helping one person succeed to be independent – even if the person they are currently helping is themselves (specifically related to Polytrauma and Traumatic Brian Injury – though can apply to anything other than these two things as well).  

A HOPEster is someone willing to share information, offer support (whether that be emotional, mental, physical, or just by sharing awareness information), and encourages advocacy (self-advocacy, medical advocacy, advocacy awareness).

A HOPEster is someone that thinks outside the box, is passionate, idealistic, and believes in the inherent goodness of others and our collective responsibility to each other as human beings.

 

Proud to be a HOPE'ster!

(right click on picture to save to your device or share link in above web browser)

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

HOPE TBI – Bring Awareness Campaign

Hello There HOPE’sters.  We are thrilled to announce 2 awareness ads for this website for you to share in emails, in your social encounters both online and offline.

Below each video is a description of what the video is about and why it was created.

Feel free to click the “SHARE” button in the top of which video you like the best, to choose the sharing option you prefer.  SHARE SHARE SHARE….help us bring awareness to others.

This one was created with the thought in mind of how we can overcome anything with the right attitude, with awareness/education, and with proper support.  Support can come in the form of friends, family, providers, and even our own children.  It is important to remember to find our smile, to love, to laugh, and to embrace life and live it to it’s fullest – in spite of our seeming limitations and new realities.  That, in the end, we will be okay – because we have each other – we will overcome!

(of course bubbles always represented to me, a time of innocence, frivolity, and life’s possibilities – you never get too old for bubbles)

 

This one was created first and the song’s theme is “I will fight for you”.

I created this website with the idea of healing and fighting for myself and my recovery by learning and documenting as much as I could about my injuries…and then documenting what I had learned from my own experiences, documented research, and subjective interpretations.  I created the website with the desire of helping to fight for others with similar injuries (polytrauma or traumatic brain injuries) and help bring Awareness to as many people as possible.  I want it to be a global reach that says:

“Hey, you are not alone out there in your recovery.  You are not alone as a caregiver or a provider – you are not alone with the questions you have, the symptoms you feel, and the life you are struggling to make work for yourself or others”.    

I want this video to be something that is remembered.  Whether you hear the words “I will fight for you” as a song to yourself in your own mind to help you keep going – because your life is truly worth living; or as a representation of your desire to support and advocate for others….that you will fight for them, no matter what; or as a reminder that this site is a place you can come to share, get information, and feel like you are in a place that cares and understands.

The blooming flowers in the video are Cherry Blossom Trees.  This has been symbolic for me for quite some time now.  See our page under CHERRY BLOSSOM TREE PICS.

 

(any ideas or comments welcome – please post them below or email us through our Contact page)

Site Owner – Caren Robinson

Hello there. I am a polytrauma and TBI survivor. I acquired mine from a wreck (head on collision) where my seatbelt failed and I was ejected (see Frequently Asked Questions page for more details).

I for a long time, felt it wasn’t important to “show” a picture of who I was.  I have gotten lots of requests for this though. I realize people want to see a “real” person. I wanted and still want… the site to be something that could be relatable regardless of what a person looks like….because after all…TBI is often invisible. So are most bodily trauma’s once the bones heal. Yet this is NOT the end of the healing process.

 This website is a growing passion for me with the more I advocate for myself, learn about myself, and learn about others experiences. This website is an outlet for my continued healing, rehabilitation processes, and a way to share what I have learned with others.  Helping One Person Excel I truly believe…begins with who I see in the mirror each day – Me.

To Be Independent is always the goal….yet that comes with a lot of dimensions and levels of intricate obstacles.  I hope that you find something in the pages of this site that help you, or someone you know.

If you’d like to share your story, or offer a guest blogging post …that would be amazing. Your story matters. Are you a Survivor, Caregiver,  Family Member, Healthcare Provider, Friend, Employer, Co-worker?  Whether the person is living or deceased…their story still matters.

Feel free to ask me questions in comments below or in email at hopetbi4ever@gmail.com I will answer as honestly and as directly as possible.

Cinco De Mayo 2016 : Caren Robinson

Cinco De Mayo (May 5th) is the date that is observed to commemorate the Mexican Army’s unlikely victory over French forces at the Battle of Puebla on May 5, 1862.

Much like Cinco De Mayo….my recovery and rehabilitation processes have had numerous UNLIKELY VICTORIES!

So it is ironic, and while tragic – also beautiful that my proposed final surgery on my shoulder/scapula/Acromion process was on May 5, 2016. This was the surgery that would also give me MY independence…..from an orthopedic (arm/shoulder) perspective anyway.

Now…to just wait until my follow-up appointment on June 1st to clear me for the Physical Therapy Regimen (exciting stuff).

I continue to be in awe of Regions Hospital and Health Partners system of patient focused care there in St. Paul, Minnesota. Perhaps because my providers there have been so instrumental in being so responsive and progressive in numerous aspects of my care, and continue to be.

On May 5th I underwent the final surgery on my shoulder (hopefully forever) to plate my Acromion Fracture which had gapped and was not healing. This was an unprecedented surgery for my orthopedic surgeon who has a niche in that field specializing in scapula injuries. He stated that the type of plating and procedure during this surgery for the Acromion Reconstruction nonunion fracture he had not done before, and that this repair was in the top 1-2% of complexities despite having an International referral practice for such injuries.

So I want to take the time to thank the folks involved in my care and surgery while in MN this time around. I tried to take diligent notes. If I missed someone, it was not intentional and I appreciate you just as much.

It all begins with how you are welcomed. When you walk into Regions there is ALWAYS someone there to welcome you and ask if they can help. It makes you feel like they are actually glad you are there…..it’s a great feeling when you are full of anxiety about your visit. It kind of preps you to just go with the flow…so to speak.

To Lonnie and her coworker (nurse that brought me back to preop from waiting room); Aneshtesiologist Dr. Mike Scmid and his nurse Anesthetist Marlene; Pre-op nurses Beckie, and Jackie…..and let’s not forget Lynette F who FINALLY got the IV started successfully; Amelia (who cleaned the surgery site); the Orthopedic Fellow (or Nurse don’t remember) Kyle you guys are all amazing and helped me relax before taking that final plunge to the Operating Room.

To my Trauma team in the Operating Room, including Dr. Peter Cole, THANK YOU for making me better and keeping me alive. I know I am a difficult and complex case. You never gave up on me or dismissed me, or made me feel embarrassed about anything. You are amazing and that is not even a strong enough word to describe your abilities and how much I am truly appreciative.

On the floor the first Nurse I had was named Mike. He had dark beautiful hair and a gentle spirit. He was very attentive along with his PCA Sandra “Sandy” and Bretta the respiratory therapist. I also want to thank Aron for my first meal after surviving surgery. You are a gem. I want to thank Annie for the Aromatherapy and appreciate her professionalism when I did not want her as my nurse due to my January experience with her. I didn’t immediately remember her name…but did her face and voice. Upon reviewing my notes I realized why she was familiar. I want to thank the Charge Nurse of the floor who was a patient listener and got me another Nurse who was awesome to deal with; I want to thank Katie from the lab; and Chian from transport (super nice person who has a relatively thankless job); I also want to thank Amanda, Tim, and Chris from Xray; Dr. Spilseth the Intern who checked in on me in my room; Thank you to Rachel my nurse and her PCA Uniqua; Jennifer from admitting who had the questions about insurance; Kjirsten the Social worker; Brent and Vic from OT and Meghan and Jenny from PT; a thank you to Kidist as well.

I had many wonderful nurses. The list of names was hard to keep track of….I do want to also thank Diana as well along with her PCA Logann (who ran ice packs for me and I am sure was tired of coming in my room); Logann, Dianna, and Patty who replaced Dianna on her shift. I appreciated the rounding from Dr. Hole. I also want to thank Leah and her nurse trainee Sarah and Logann again (yep got me again !); Scott from RT – thank you for checking on my pulse ox and CPAP; Tim and Jessica who did my CT Scan, and Aric from transport…vroom vroom; thank you to my Nurses Netti who took my vitals and said my nurse and pca (Shelly and Lisa) left (without giving a bedside report); thank you to Ketih and Karen; Lynn Charge Nurse and Night Charge Nurse Melissa;

Thank you also to Shelly my nurse and Lisa her PCA (who kept getting Shelly and later Shelly would say that Lisa never got her once and was apologetic) who were late getting me my post op pain meds by over an hour and taught me how much resilience I really have in this tired body.

Thank you to my nurse Melissa and PCA Jonase (spelling might be wrong on this one)…Thank you to Mai, Kaitlyn Schoeck 2nd year Resident and Jocelyn who worked tirelessly to get together all my take home paperwork; Thank you to Marcus Mittelsteadt 2nd year Resident, and the unforgettable Germaine from transport (what a selfless and patient soul) to medical records, and then to the Hotel Bus waiting for us upon departure from Regions after all was said and done.

A special thank you also to Tina Most and the CARE Team as well. 

Dr. Cole, thank you for visiting me in my hospital room on Mother’s Day (and a Sunday no less and your weekend off).  It meant more than you know.  You sat down and explained everything.  You rock!  You are an Orthopedic Genius.  Blessings Abound for you and yours I am sure.

Source: Cinco De Mayo 2016 : Caren Robinson

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Time and Time Again

Well.  Do we have a LOT to catch up on.  No I haven’t dropped off the face of the Earth somewhere.  Though some days I do feel quite invisible…but that is another post entirely.  Trying to keep things real and authentic here and in my mind I have written each update a million times and nothing I felt I could say here matched what was in my head.  So tonight, I was just like….well…to heck with it – just be out there with it.

We miraculously by the skin of out teeth made it to MN.  We still have not been properly or fully reimbursed for our January, February, or March trip.  This has been financially debilitating to us, however, that is not what I want this blog to be focused on.

What I do want to keep the focus on – is the progress and new medical developments that I have encountered, am learning about, and am hoping may help one of you out there in some way.  Perhaps someone you even know or have known or will know at some point and time.

So I admittedly have been depressed.  On February 5, 2016 I had a PT appt at home.  I then had a PCP appt after that.  Well, my husband was helping me get dressed, like he has done so many times before.  I laid my arm on his arm so he could help get my shirt on me and we heard the loudest POP or CRACK I have heard from a body part.  It instantly shot pain up the side of my neck and to my ear.  Then strings of pain across my R chest and into my back some.  It was dreadful.  I couldn’t put my arm down and the pain was IMMENSE.  At my PCP’s office she checked me out and reasoned with me that since it “felt” palpably okay that it was most likely recovery pain.  I told her it didn’t feel right.  I had even called MN that same day on the way to her office to leave a message for Dr. Cole (my orthopedic surgeon). It was on a Friday and since we were going to be in MN on that next week my PCP opted not to xray it.

Well we went…and bottom line is that POP was a BONE being FRACTURED…..a horrible sound I might add.  I had apparently fractured my Acromion process (top of my shoulder).  Now based on what Dr. Cole explained this was rare (from what we read with our online research – only like 7%- (of course this is rare I thought). He had an xray and CT done.  I will say that I have come to realize that xrays have not been incredibly diagnostic for me all along. For some they are better and some they aren’t – me well not so much.

So what did that mean.  Well it was aligned for now and I had to do absolutely nothing with it until my next appointment in March to hopefully give it time to heal.  Start the protocol all over as if I had just gotten out of surgery.  I will say the pain was horrible….but different than shattered pain.  I would also say that I am being very well acquainted with a multitude of pain experiences and each have their own level of challenges and differences.  How I moved before the scapula surgery that would give me some relief here and there did NOT work for this fracture.  I was petrified for it to get separated.  If it did get misaligned that would mean potential surgery…This time on the Acromion.  We were super super cautious and eventually the neck pain, chest pain and such receeded back into the center of the top of my shoulder to remind me just how broken it was OUCH.  But hey… progress is progress. Oh and PT and OT got put on hold.  NO Chance of geting that misaligned.

It was a LONNNNNNNNG several weeks.  We saw Dr. Cole again on March 16th and this is where we learned  That gosh darn fracture hadn’t healed yet and was separated a bit…not by much and he debated just going in to get it repaired and plated while I was there, however it did show bone growth, even though still quite painful and limiting.  My head of course was swimming with information and questions that I didin’t seem to be able to get out the way I wanted – so I just listened – not really getting it yet.  He decided to cancel the April appointment and then set an appointment for May 2016 to give the body time to do what it appeared to be doing ever so slowly – trying to heal itself.  That meant however, no weight bearing at all with my right arm though I could begin again with PT conservatively.

So in May we find out whether I stay for a bit to plate this bad boy and fix it for good, or whether nature has taken its time, but actually healed it properly.  That appointment feels like its lightyears away.

There is actually some awesomely good news in all of this though.  There is a LOT less pain in my scapula.  Like it is miraculous how much he helped me with those January surgeries so I have utter faith in this man – even if I do have to have another surgery I know….like truly know he will make it better.

I am still quite limited but that will just take time and lots of therapy to get my strength back up.  We don’t know how much of the nerve damage will remain, continue to affect things, and all that stuff.  Time will tell.  I will say that it just flooded me like

REALLY MORE BROKEN STUFF!!!!  It was a lot to absorb and focus on in a positive way.  After a while, even though I know things were feeling different in some ways and better…..they were worse in other ways and status quo in yet other ways.  Also fighting with Insurance to get basic quality of life and such should not be a constant fight and battle.  This just adds to the stress and I truly believe slows the healing process because now you are always focused on that next ball getting dropped by them….it’s distracting, annoying, and is something that needs reformed for sure. That’s my soapbox on that though.

So here we go.  Working hard to stay afloat.  Not just financially but in the dynamics of our relationships with each other in the house.  The trips are hard on my body and my brain.  I think I am going to end up with the back pain for life.  The headaches are crazy consistently unrelenting and so mch a part of me now that I don’t remember when I last never had one.

I feel so flooded and overwhelmed after I get home fro travelling that  I literally crash out and sleep like I haven’t had sleep in days.  Going each way usually takes me a few days to play catch up with my already seemingly dulled self.  There is so MUCH stimulation that I was never aware that I was aware of before.  Travelling def makes a difference.  I have totally decided that travelling by train is much less intense than by Plane.  Still tons of people and still tons of noise and activity, but we get our own room which helps quite a bit with trying to get a grip…..and it is way more economical.

We keep moving forward….making impossible choices….going with the flow Time and time again. The future uncertain, but glad that I am still here to have a future to be uncertain about…..

So sorry for the delayed update – more posts to come…..just been battling exhaustion, pain, fatigue, and a good dose of BLAH!

Article – Time and Time Again by Caren Robinson

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Scalpel At The Cross

This is how amazing my Orthopedic Surgeon from MN and his team’s are. He is the one who jus completed two surgeries on my scapula and reconstructed it with a bone graft.

They truly care about their patients; and I am a growing strong advocate of their work and care as a whole both State Side and Away….

Minnesota technology team helps St. Paul surgeon’s Peru mission

 

This is the charity Dr. Cole and his wife started:

Scalpel-Logo
Scalpel at the Cross

Thank you for visiting the HOPE TBI Website.

Please take the time to make a comment, share your thoughts, and tell us what impacted you the most and what brought you here:

https://hopetbi.com/reviews-and-testimonials/

Your input is important to the development and growth of this website, and we like to know what is going on out there in your thoughts.

Thank you for visiting us! We look forward to hearing from you.

Two Surgeries Completed January 2016

Hello. In MN January 11-24, 2016. It has taken me this long to get my energy up enough to type an update…..

I apologize that it has taken me so long to come to give all of you an update since my surgeries. I also must apologize for any horrible writing or spelling…I am still on the mend. First I want to sayis HALLELUJAH i AM ALIVE!!!

This has been quite the experience and it will continue to be. More posts will follow this one, however for this one I want to address some special folks. I tried to keep track the best I could with my notes. I truly apologize if I miss your name.

Specifically to My Primary Care Physician and her office staff; my Counselor, Mercy Medical Angels (especially Steve Craven), Barry and Caryn Mehler (dear Friends), Mary Herndon-Williams (sister from another mother), Priscilla Benavides and her husband (an old soul friend), Karleen Robinson (my mother-in-law), Carly Kissinger ( a teacher),  and Samantha Rogers (Trauma Survivor), and the Rabbi from Ahavas Israel in Grand Rapids, MI; and Unity Center for Spiritual Growth in Ada, MI; United Airlines and its many wonderful staff and crew, Gerald R Ford Airport out of Grand Rapids, MI to Chicago O’Hare (in nowhere else but Chicago, IL) to Minneapolis St. Paul. Minnesota and those of you who pushed my wheelchair – THANK YOU FOR GETTING ME THERE SAFELY. Without your help and support my arrival would not have been possible. To the gentlemen in 1st class who gave up your seat for me because I looked so uncomfortable in coach from Chicago to St. Paul – mere words are not enough to give you my deepest gratitude. You are a gem.

When we arrived. An enormous thank you to Yellow Cab, Embassy Suites, UBER, SuperShuttle, the hospital shuttles, delivery folks, and the beautiful people of St. Paul who made a very scary and lonely time not so scary and not so painful for my husband and myself.  Thank you Unity in the Heart Church in St Paul, MN.

THE GOOD STUFF – MEDICALLY LAIDEN

To my EMG team and Dr. Olson at Regions hospital, the Radiology Department, the lab, Medical Records and the Welcome staff – thank you for being quick and efficient and accommodating.

Veronica the bone specialist and Dr. Pegrow from Infectious Diseases – you guys are amazing and taught us a lot. Thank you Charge Nurses and Patient Relations and for the Alternative Medicine that compliments the Allopathic side of things. This made a world of difference for me and helped manage my fear, anxiety, and pain..

For my miraculous Dream Team with Health Partners, Regions Hospital, my Orthopaedic surgeon Dr. Peter Cole (our dedicated man of God and Science)  who made all this possible for so many like me AND ME, Tricia Corbo, Jenny, Tina Most, his two fellows Dr. Hesse and Dr. Diskin, the Anesthetist and the Nurse Anesthetist and all the office and team members whose names I didn’t write down, don’t remember or I don’t know in the office, this process and in the Operating Room – thank you for helping fix me and for keeping me alive to face another day. Your hands are truly the extension of the hands of God himself and I value and am grateful for each and every one of you.

For the floor staff thank you to Dr. Campbell (you were a sheer delight), Dr Brenner (miss that beautiful long hair 🙂 ty for your compassion), Dr. Mehta (kind eyes and soft smile); Brigid PT and Lena OT and lets not forget the folks that make the Doctor’s work look flawless and managed my pain and care in a more extended way – my NURSES Alena, Stella, Annabelle, Megan, Jessie, Abbey, Kasie, Niki Z (or2),Rachel, Rin, Rose, Leann, Brian and Kristy – Annie I forgive you for missing my meds for the whole night….it was a good lesson for me not to miss my scheduled doses – even good comes from mistakes…..forgive yourself and move on.

Also my Nursing Assistants they call PCA’s in MN: Fey, Hanna, Sandi Nettle, Laura, Dominique, Lisa, Mollie, Crystal, Lindsay, Nalee and any others I may have missed while sleeping or being to groggy to write. You were my hands when I couldn’t and my extended family while away.

To my husband Rick Robinson and soulmate and best friend – thank you for braving the trip, this uncertain future, and for sacrificing so much of yourself and your time, and your sleep for me. I know it takes so much from you and you deserve more than I could ever begin to repay you. I love you and value every moment with you. Thank you for believing in me and not doubting me all along through this whole shabang.

To my family who waited for me at home, for my darling children, for those who lovingly cared for my children while Rick and I were gone…..Thank you and I appreciate the support , love, and prayers.

I am home dear ones I am home! I am so eternally grateful and not last or least, but thank you Heavenly Father for granting me purpose in this world and allowing me to carry on another day to tell this story and continue to recover.

Follow up appointments in MN with Dr. Cole on February 10, 2016, then at 6 week mark – then 3 months, 6 months, 9, months, and 12 months. We are grateful for these opportunities to watch miracles abound and grow.

Two Surgeries Completed January 2016 – Determined We Are