Be A HOPEster!

WHAT IS A HOPEster?

A HOPEster is anyone who is interested in helping one person succeed to be independent – even if the person they are currently helping is themselves (specifically related to Polytrauma and Traumatic Brain Injury – though can apply to anything other than these two things as well).

A HOPEster is someone willing to share information, offer support (whether that be emotional, mental, physical, or just by sharing awareness information), and encourages advocacy (self-advocacy, medical advocacy, advocacy awareness).

A HOPEster is someone that thinks outside the box, is passionate, idealistic, and believes in the inherent goodness of others and our collective responsibility to each other as human beings.proud-to-be-a-hopester

https://hopetbi.com/awareness-matters/hope-tbi-awareness/

Brain Injury Reversed In Toddler

Science is miraculous….HBOT therapy that reversed brain damage in toddler.

https://m.facebook.com/story.php?story_fbid=1933056560320331&id=1850833625209292

Story Submission Page – UPDATED

Check out our updated Story Submission Page.

Now with Caregiver and Survivor Writing Prompts

You do not have to be a writer to tell your story. Just willing to share it with someone.

https://hopetbi.com/your-stories/story-submission-guide/

Caregiver Story Prompt

Hello there. Thank you for your interest and considering our site www.hopetbi.com to share your story. I would be honored to tell your story as you wish to share it. We are glad to correct spelling so don’t worry about that.

I want you to be able to tell your story your way. Some things to include in your story that people often have questions about, are listed in the questions below….

Please feel free to add more than the questions listed. This is just a helpful starting point for a Caregiver story:

  1. What happened to cause you to become a Caregiver for Polytrauma or TBI?

  2. What injuries did they sustain?

  3. When did this occur (Date or Season and Year, or)

  4. How old were you when you became a Caregiver?

  5. How old is the person who acquired the TBI or Trauma? How many concussions or TBI’s have they had? How old are they now?

  6. How Long was their recovery? If still recovering what are you involved in helping them with, regarding care?

  7. Can you identify what your biggest struggles are or have been over the weeks/months/years as a Caregiver?

  8. What things do you do for self-care (to cope, take breaks, stay refreshed)?

  9. Were you financially prepared to take on being a Caregiver?

  10. Did you have any special training for the injuries of the person you are/were a Caregiver for?

  11. How has being a Caregiver affected your physical and mental health?

  12. Have you had the social support and resources you needed to provide the care needed?

  13. How has being a Caregiver impacted your relationship with that person since their injuries?

  14. Where do you go to connect to other Caregivers like yourself?

  15. What are some of your hope and fears regarding this whole journey as a Caregiver?

  16. Where do you live now (State, Country)?

  17. What do you want other people to know about your experiences?

  18. Why did you choose to tell your story?

  19. What name do you want represented online (first and last please)

  20. Do you have any pictures you want to submit of the before, during, or after? (accident, hospital stay, incident, etc?)

Ways to submit your story:

  • Writing it and submitting a saved PDF version of your story,
  • Emailing your story to hopetbi4ever@gmail.com.
  • Videotaping yourself telling your story and then we can type it up; or submitting a voice recording telling your story; and please consider submitting pictures to validate your story and make it more personal to others

Who can submit a story? Survivor, Healthcare Provider, Caregiver, Family relative, friend, etc.

Can a story be submitted for someone who has died? Yes, if their story involved sustaining a Traumatic Brain Injury or bodily trauma, and their death was a result of bodily trauma and or Traumatic Brain Injury/Acquired Brain Injury. Please message if you have any questions. You can be the voice of their story if you knew them personally.

Also for you to know…I am not representing any business and there is no compensation for sharing your story. I am a Survivor and saw a need I wanted to help with as much as possible. We post stories on our site to give people a voice to tell their story and a place where others can read it.

E-publish simply means (for our purposes) to post on our site.

SPECT CT – Diagnosing and Treatment of TBI

As Science evolves, so should the diagnosis and treatment of Traumatic Brain Injuries.

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Check out our newly added Web Page:    SPECT CT

 

This is an important second test in settings where CT or MRI are negative after a closed head injury with post-injury neurological or psychiatric symptoms.

Medical Cornucopia

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So something amazing happened during the last four years, in my recovery process, and through countless hours of rehabilitation.  I discovered that with all my new normals, some things remain the same, some things about me are vastly different, and some things have become hugely magnified or what was once dormant is now renewed in a different way.  What I am referencing in this particular post is my absolute love and passionate interest in medicine, science, and all that entails.

I find I am at peace the most when learning new material in these topics.  This has been my “go to” coping mechanism since I was like 5 years old.  Medicine has always been my first love.  I have gone away from it, come back to it, gone away from it again.  Then when I was wondering just what I should be doing with my life and evaluating whether to have more children, where to take my career, enjoying my job

Some people cope and find their center of “grounding” by running, drinking alcohol, exercising, listening to music, playing video games, communing with nature, watching TV/movies, smoking, having sex, going to church, participating in artistic expression, etc.  Me?  I find that Medicine, specifically investigative Medicine or investigating medical issues is one of the things that brings me a sense or peace, a sense of purpose, a sense of clarity, a calm.

That being said, in this upside down world of taking back my life from this trauma and all the subsequent experiences since the wreck I was involved in….I find that researching my injuries, how to better my life, how to prove the science behind all the subjective, objective, developmental, and evolving facets of my recovery is how I cope.  It has served me well and helped me find the best care, catch the mistakes made by providers, celebrate the things done correctly by providers, find the best providers, realize that even amongst specialists, even the basics can be missed; it has validated many things for me. It continues to enlighten me about the realities of living a new life, and how best to go about it.

Proper diagnosis, proper treatment, and proper documentation cannot be ignored as being imperative and important when somebody endures any medical event or has persistent symptomology. Science is changing and evolving every day.  How small, tunnel visioned,  limited, and narrow minded we would be as patients, as providers, as attorneys, as caregivers, as case managers, as advocates to ignore the advances  in Medicine (both traditional and alternative) and not allow ourselves the freedom to continue to learn, to do no harm, to keep up with current trends, and to evolve into something greater, broader, and grow beyond our proverbial box of comfort?

This website is a part of my legacy.  My venture into baring myself openly to all of you who come across this page, who see these words, who read about these struggles, these triumphs. My attempt to help you find resources easier, should you need them.  At the very least, maybe understand how multi-faceted and life changing a Polytrauma and/or Traumatic Brain Injury can be.

That being said, if you come across a new article, a new treatment, a new study, a new idea, a new topic you want to see in these pages,  a revolutionary sytematic way of addressing recovery and rehabilitation, I would be honored to hear from you and thankful for you sharing what you have found……. with me.

If you have gotten this far down in this post….thanks for sticking it out and reading it.  Please share with others.  Feel free to leave comments below.  I actually read them!

Never give up HOPE!

 

Legal Monstrosity

claims

Hello Folks. I’m back on my blog. YAY!!! While I visit often, I have lots to share with you all, and have much medical information, numerous discoveries, and lots of additions to add to this site over the next several weeks. Now however, I am in a position to express my own personal views candidly and without fear of reprisal about something I have been wanting to for quite some time.

It has been a while since I have posted in my blog here. I wanted to explain that in addition to focusing on my rehabilitation goals, I was also embroiled in a fight for my life with the insurance company representing me in my Michigan NO FAULT claim.

fighting

I had sued them for numerous items of service they were not paying on time/stopped paying under the laws that are supposed to, in theory, mandate and compel them to act in a judicious and timely fashion by the letter of those laws.

I, like so many other NO FAULT recipients, suffered additional and repeated traumas at the hands and manipulation of the Insurance Company(ies) that are supposed to be handling the various aspects of our NO FAULT claims. Instead, bills that they are supposed to pay in full, within 30 days of the bill being submitted to them (according to law); attendant care established through a prescription of a licensed physician ( for home health care, nursing care etc) provided by an agency or family member; medical mileage/travel supposed to be reimbursed after it has been incurred; replacement services (household services), wage loss, and other benefits afforded by Michigan law – they ignore &/or pay at their whim…not based on the actual laws. These laws are great on paper, for the constituents, yet there is no accountability for the Insurance companies to be mandated to actually follow the law on paper.

Did you know that the law States that the insurance companies can be charged “Interest” on any bill that is not paid within the 30 day time frame that it is submitted to the insurance company.

Again, this sounds good on paper, right? WRONG! Apparently the manipulation of that law is wholly accepted throughout the whole NO FAULT process as there are currently not any laws in place detailing when or how those interest payments must be paid AND making them non-negotiable items, or compelling them to actually be something the insurance company(ies) wish to avoid, because they would be required to pay that interest. It does not eliminate them from being negotiated away. They can only be charged this “interest” if you acquire an attorney, sue them, AND actually go through a trial where they can still negotiate out of that responsibility. The majority of cases go through a settlement procedure (like mine) and apparently that eliminates all possibility of them every having to pay interest on anything, that by law, they owe the interest on. This abhorrent process is just one of the many things that needs to be reformed in our NO FAULT system. Bottom line….if you don’t pay your bills within 30 days of receipt of that bill, you WILL incur interest for each day that is delayed. That interest should NOT be allowed to be negotiated away in Settlements, Trials, or other modalities regarding the NO FAULT process. This is a willful and purposeful choice they make, knowing there are no consequences. Holding them accountable, will, in theory, allow the NO FAULT system to do what it is supposed to do, take the burden off the individual who was actually in the wreck, so they can focus on their recovery. This would also take the burden off of the Courts being tied up in months or years of the back and forth legal ping pong that these Insurance Companies can afford to play. Reform should be attempting to compel the Insurance Company(ies) to do their jobs …..with our money.

The NO FAULT system through and through is a progressive, positive and integral part of our infrastructure in this State, absolutely worth saving and investing time and money in. It is a system to be envied by all other States and a model worth replicating. However, it is a system that needs transparency across the board, and accountability across the board as well though. After all, fraud and spuriousness is often propagated by the Insurance Company and their agent(s) themselves.

NO FAULT does require reform and clearer lines of accountability for all involved, but specifically the Insurance Providers themselves (obviously I feel this cannot be expressed enough). The very leviathan presence of these companies who with impudent disregard for the Courts, Judges, constituents, and laws voted on and enacted by the constituents (voting citizens) – often find themselves escaping their financial responsibilities, shirking the due diligence required of them, and using subterfuge and prevarication, knowing there is nothing to hold them accountable. Nothing at all. In my opinion, this is the grossest form of medical negligence, injustice, and sheer despicability.

That all being said, I have come to the end of this particular chapter of this grueling process through a Settlement process that was to say the least….less than desirable. Since physicianthe wreck I have literally fought for each breath, each step, each grip, each movement, each thought; each valuable, talented, progressive, and proficient providers; each benefit afforded to me by law, each opportunity to improve and have a decent quality of life. While not easy, while not always positive…absolutely necessary to survive.

I have endured countless days, weeks, months…and now years of acute/chronic pain, loss of body integrity, loss of social confidence, ongoing medical crises, and a complete change in my life, the way I live and relate to others and even relate to myself.

I have been made aware, through my personal experiences, of the dark side of the medical establishment that includes some incompetent white_coat_man_small_compressed_400x4008763830801952850647.jpgcolluding providers “in white coats and black hats (figuratively speaking)”, inaccurate medical documentation, missed/delayed labs, missed/delayed surgeries, missed injuries, delayed treatment,missed radiology exams, and the desperately fallible humanness of those we should be able to trust implicitly with our lives.

Despite all of this though….I have learned to advocate for myself on a different level. I have learned I AM a voice for those who are not able to be one for themselves. I have learned that we as a medical society are only just starting to learn about the miraculous processes that make us who we are.

I have learned who my true friends are or aren’t. I have learned that there is always a reason to HOPE and to never give up. I have learned that FAITH and LOVE really does prevail over darkness and injustice.

I have learned that every bit of essence that this blessing of a life has given me by the miraculous opportunity I have been given to survive is something to be protected and coveted. I have learned that sometimes being an honest, honorable, and sincere individual is sometimes just not enough. I have learned that discrimination comes in forms we don’t even talk about as a society. I have learned that I can endure more pain than I would have ever thought possible. I have learned that my life matters and I can find value in the person I am now. I am still learning how I can make a difference in this world and be a catalyst for positive changes and not compromise the core of who I am.

Finding the path to recovery is not just a journey….it is a pilgrimage. I will survive, despite continually traversing all of this Legal Monstrosity.